Cancer records management
What we do:
- Maintaining patients' records for the the hospital's oncology patients
- Providing data on all new cancer cases to the Mainz-based Rhineland-Palatinate Cancer Registry (Landeskrebsregister Rheinland-Pfalz) in accordance with statutory regulations which came into effect on 1.1.2000.
- Providing administrative support for the Oncology Working Group
- Maintaining and developing the in-house cancer database
- Participating in the work of the Ludwigshafen Oncology Centre
- Providing information and training events relating to cancer records management and coding
- Disseminating research findings at specialist symposia and conferences
Our cancer records management system "TuDas" (literally, "DoIT") is also used in patient records management. The system was developed in-house in 1999, in collaboration with an external IT systems provider. The system is ideally suited to local requirements and can be easily adapted in case of changing needs. The system is under constant development, with more programme modules being added all the time.
The database contains contact and medical details of approximately 23,000 patients (May 2000 estimate) who have been treated in the hospital since 1989. The complete individual patient' record consists of a core dataset, a diagnosis dataset, one or more illness development dataset(s) and therapy dataset(s) and, where applicable, a final data set.
The core dataset contains the patient's personal information: Surname, first name, date of birth, address and gender. In some cases additional information may be included, such as number of births, smoking history, occupational exposure, multiple sibling status and details of relatives with cancer. In addition, the core dataset records whether the patient has been informed about the statutory duty to report all cancer cases to the Mainz-based Cancer Registry.
The diagnosis data set contains information on all illness-related information up to the point of diagnosis. The time of first diagnosis and the circumstances surrounding first diagnosis are recorded here, as are the patient's first admission to hospital and the referring institution/doctor. In addition, the dataset contains clinical data on the patient's overall health status and the level of pain reported at the time of admission. Cancer details recorded include the exact location of the tumour (in case of solid tumours) and the diagnosis according to ICD criteria and tumour histology. Details also include tumour staging (based on TNM in the case of solid tumours, in the case of haemotopoietic tumours, based on Ann-Arbor, FAB or other commonly used staging systems). Regional lymph node involvement or metastatic spread to other organs can be recorded in detail. Last but not least, the dataset also includes the full history of all diagnostic and therapeutic measures taken.
The therapy dataset contains details on surgical therapy, chemotherapy and/or immunotherapy, and radiation therapy. Each admission is recorded, giving full details of any treatments administered.
Medical records include all the relevant information contained in the patients' medical charts. This information is passed on to the Records Management Department for processing. All personal and disease-specific data (e.g. tumour localisation and histology, tumour staging, metastatic spread, diagnostic and therapeutic measures) are then recorded in the cancer database, with some requiring coding prior to data entry. Due to reporting requirements relating to the Cancer Registry, particular care is taken over the collection and recording of data relating to new cancer patients.
Since the implementation of State Legislation relating to the introduction of a new cancer registry (Landeskrebsregistergesetz) in December 1999, the Rhineland-Palatinate Cancer Registry has been collecting information on all new cancer cases.
Data on hospital inpatients are passed to the registry by all the hospitals in Rhineland-Palatinate. In Ludwigshafen Hospital, this task is the responsibility of the Records Management Department.
Deaths are notified to the Cancer Registry by local health authorities. When a patient who is registered on the hospital's cancer database dies, the Records Management Department is notified of the death by the Cancer Registry.
Where a patient has been receiving treatment from a general or private practice, it is the responsibility of the practice to complete all necessary reports on cancer patients, with the help of a special form.
Once all data have been collated and processed, the federal cancer registries pass the data on to national and international agencies for further scientific analysis.
Herr Dr. Gansert
Psycho-oncological and social services available in Ludwigshafen Hospital
- Breast Care Centre
- Bowel Centre
- Pancreatic Cancer Centre
- Skin Cancer Centre
- Prostate Cancer Centre
- Medical Clinic A
In addition to medical treatment aimed at the physical manifestations of cancer, patients at Ludwigshafen Hospital also have access to advice and support from our own team of psychologists. Cancer can have an impact on different areas of a person's life and may have an adverse effect on a patient's quality of life. As a result, all our inpatients are offered counselling to assist them in coming to terms with their illness. If a patient prefers to be accompanied by a member of their family, this can be arranged upon request. We also provide information regarding other help and assistance that is available in the region. Members of our psycho-oncology team may recommend that treatment should continue on an out-patient basis following discharge and, if requested, will be able to make the necessary contacts.
How the team may be able to assist you
- Providing comfort and emotional support throughout your stay
- Assisting you in finding and developing ways of coping
- Visualisation and relaxation techniques
- Crisis intervention
- Providing information on other help available
- Where appropriate, referrals for further support on an out-patient basis
Kooperationspartner: Krebsgesellschaft Rheinland-Pfalz e.V.
Telefon: 0621 578572
Fax: 0621 577051
Interessenten können sich an folgende Adresse wenden:
Klinikum der Stadt Ludwigshafen gGmbH
Prof. Dr. Med. M. Uppenkamp
Vorsitzender des Onkologischen Zentrums Ludwigshafen
Tel.: 0621 503-3900
Fax: 0621 503-3977
Our services are available to patients from the following specialist centres
Diplom-Psychologin Birgit Haas
(Hauttumorzentrum, Med. Klinik A)
Telefon: 0621 503-29571
Fax: 0621 503-29575
Diplom-Psychologin Katja Frehsen
Telefon: 0621 503-29570
Fax: 0621 503-29575
Diplom-Psychologin Irene Hinz-Joas
(Prostatakarzinomzentrum, Med. Klinik A)
Telefon: 0621 503-4718
Fax: 0621 503-29575
Diplom-Pädagogin Renate Lohn-Ollig
(Brustzentrum, Med. Klinik A)
Telefon: 0621 503-4717
Fax: 0621 503-29575